HJAR Sep/Oct 2025
38 SEP / OCT 2025 I HEALTHCARE JOURNAL OF ARKANSAS ADH CORNER COLUMN CHILDREN’S HEALTH We are now shifting our practice: from automatic disqualification to shared deci- sion-making, where patients and doctors work together to weigh the risks, consider the evidence, and decide what’s best for the individual. Why the Old Approach Needed to Change HCM is a heart condition where the heart muscle becomes abnormally thick. In some people, this can block blood flow or cause dangerous heart rhythms. It has long been one of the most common causes of sudden cardiac death in young athletes, especially in high-intensity sports. Because of that risk, American Heart Association and American College of Cardi- ology (AHA/ACC) guidelines from the 2000s and early 2010s were very strict: No competi- tive sports for anyone with HCM, regardless of their symptoms, risk level, or desires. Doc- tors were advised to give firm recommenda- tions, and patients were expected to follow them without question. With more research, however, we began to learn the actual risk of sudden death was lower than previously thought, especially in well-managed, low-risk patients. We also recognized the emotional, social, and even physical harm of pulling young people out of the sports and activities they love. In short, we were protecting hearts but sometimes breaking spirits. For many years, being diagnosed with a heart condition like hypertrophic cardiomyopathy (HCM) meant being told to stop playing sports. These patients, many of them young and active, were pulled from the field out of concern for sudden cardiac death during intense physical activity. Understandably, this was a protective instinct. But today, that conversation is changing. FROM SIDELINES TO SHARED DECISIONS: A New Era for Athletes with Hypertrophic Cardiomyopathy
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